These documents relate to Democracy Involvement and Accountability in the NHS – a wide policy area which includes governance and influence and shared decision making, participation, involvement and consultation of both the public and patients. As we have been discussing these issues for many years policy documents listed here may not represent our current thinking. See also Health Scrutiny and Accountability

Navigating the new NHS 2013 – Patients Association

Monitoring the NHS – very useful summary by Patient UK of the present state and recent history of organisations across the UK which

• Represent the views of patients and the public to the NHS.
• Monitor how well NHS bodies perform in taking account of these views.
• Support patients who are having difficulty with NHS services, for example, in finding a service or in making a complaint.

COLLECTIVE INVOLVEMENT

• Challenging unaccountable power Ed Miliband 2014
• Whose NHS is it anyway? PPI in England 2014
• Health board elections in Scotland 2012  — Minister capitulates to establishment over health board democracy 2013
  
• The Health and Social Care Act is hindering the aim of engaging patients 2011 
• Elect patients to GP commissioning boards, says NHS Alliance 2010 
• Healthwatch England
• A Parliament for Health: why the NHS needs a big dose of democracy
• What Sort of NHS Do We Want? David Taylor-Gooby 2012
• People Powered Health
• Big society and public services
• Centre for Public Scrutiny
• National Association for Patient Participation

INDIVIDUAL INVOLVEMENT

• How patients use access to their full health records: a qualitative study of patients in general practice 2009

• Is the government telling us the truth about GDPR and our NHS medical data? August 25, 2018
• Medical Aid for Palestinians August 21, 2018
• appeal against NHS England’s new Integrated Care Provider contract: by Jenny August 19, 2018
• 3 things you need to know about the Health and Social Care Select Committee’s report into Integrated Care June 13, 2018
• We Own It? March 3, 2018
• Democratising the NHS January 26, 2018
• Accountable Care Organisations – where is public engagement? December 4, 2017
• The People’s Plan for Greater Manchester May 7, 2017
• Politics in the digital technology age March 2, 2017
• Fringe Event: Democratic Accountability October 7, 2016
• Democratic accountability in the modern NHS October 5, 2016
• Could NHS Sustainability Plans Help Voters Influence The NHS’s Future? September 13, 2016
• Why governance and accountability matter in the provider sector July 13, 2016
• Infrastructure for Health and Public Health June 29, 2016
• Future of the House of Lords November 1, 2015
• What do the government’s devolution plans mean for a national health service? October 14, 2015
• What is the future for NHS reform? April 21, 2015
• What I don’t want for the NHS in Manchester March 9, 2015
• Devo Manc and the NHS February 25, 2015
• Further Madness in Staffordshire July 30, 2014
• Power to the People? May 6, 2014
• Foundation Trusts May 5, 2014
• Whose NHS Is It Anyway? March 28, 2014
• The democratic promise and potential of membership in NHS Foundation Trusts January 29, 2014
• Williams Commission Report On Public Services in Wales January 26, 2014
• Ten Years After – NHS Foundation Trusts January 25, 2014
• In which the Court of Appeal tells Jeremy Hunt his actions are strained and unnatural….and illegal. November 13, 2013
• Democracy in Health? July 23, 2013
• Can We Democratise the NHS? June 21, 2013
• Why the NHS (desperately) needs Local Authorities June 5, 2013
• A Parliament for Health: why the NHS needs a big dose of democracy May 2, 2013
• Using resident scrutiny to drive housing and care accountability February 24, 2013
• How can services be made more accountable to patients, public and staff? June 6, 2012
• Wanted a Socialist Health Service September 13, 1966

OLDER POSTINGS

• A 2020 Vision for Britain’s governance Alan Milburn May 2007
• Arnstein’s Ladder of Citizen Participation (1969)

• Association of Community Health Councils for England & Wales celebrates the Work of Community Health Councils  1974 – 2003
• Barrett v United Health at Creswell
• The Big Society Network
• Board of Community Health Councils in Wales
• Bring back Community Health Councils May 2006
• Calling the NHS to Account 2008
• Campaign for a Democratic Health Service – Proposals for Reform 1969
• Campaign for Health Service Democracy (preserved site 2008)
• The case for slow medicine
• Citizens, Consumers and the NHS – book by Christine Hogg 2008
• Code of Practice on Written Consultation (archived)
• Complaint handling in the NHS – Ombudsman
• Control of the Health Services SMA August 1944
• Cure the NHS a small group of relatives, patients and community members who succesfully campaigned for a public inquiry into the failings at Mid Staffs hospital.
• Democracy and Accountability in the new NHS SHA policy statement 2001
• Democracy and Accountability Conference SHA/MPU/NHSCA 2000
• Democracy in the NHS SHA Conference 1990
• Democracy in the National Health Service DHSS 1974
• Department of Health Briefing on Patient Representation January 2001
• Dignified Revolution – campaign for old people to be treated decently
• Effect of democracy on health: ecological study – BMJ (£) 2004
• The English Constitution 1873 Walter Bagehot. His distinction between the dignified and the efficient parts of the constitution applies nicely to the NHS
• The Expert Patient: A New Approach to Chronic Disease Management for the 21st Century
• Growing from the Roots: Public Involvement after CPPIH Conference 2005
• Health Expectations An international journal driving developments in patient-focused health care and health policy
• Healthy Democracy – The future of involvement in health and social care Involve December 2006
• Health Select Committee Presentation by Doug Naysmith MP 2005
• Healthtalkonline
• Healthwatch and Public Involvement Association
• International Alliance of Patients’ Organisations
• Invest in Engagement
• INVOLVE – promoting public involvement in NHS, public health and social care research
• Involving Patients in Commissioning SHA Conference May 2006
• Involving patients in the NHS SHA Conference 29th November 2002
• Irish Patients’ Association
• Is Information Technology the Key to Empowering Patients?
• Is LINKs the way forward? 
• Liberating the NHS: Increasing democratic legitimacy in health – consultation Closing date: 11 October 2010
• Local Involvement Networks powers
• Localism – speeches by Alan Milburn
• Making a Difference: A guide to evaluating public participation in central government
• Minorities within minorities: beneath the surface of community participation
• National Civic League – an American organisation dedicated to strengthening citizen democracy by transforming democratic institutions
• New Deal on Patient and Public Involvement 2007
• New Mutualism – The Third Way Peter Kellner 1998
• NHS 2010 – 2015: from good to great – Patient Involvement aspects 2010
• NHS Constitution
• Now for Health 1946 Democracy in the Health Service
• On Our Own Terms survey of Mental Health User organisations – summary 2002
• Our health, our care, our say Making it happen October 2006
• Participative democracy Julian Tudor Hart 1994
• Patient Engagement Patient Partnership Group RCGP
• Patients, Power and Responsibility
• Patient & Public Involvement in the NHS – Commons Health Committee enquiry 2007
• Patients – Consumers – Citizens
• Patient and Public Involvement in Health : The evidence for policy implementation – A summary of the results of the Health in Partnership research programme
• Patient and Public Involvement Forum Organisation 2008
• Patient Focus and Public Involvement (Scotland) 2006
• People Power: Reforming QUANGOs – Is this Applicable to Health Agencies? Bow Group
• PPI Forums need to take the initiative Stuart Copeland September 2004
• PPI OUTSIDE HOSPITAL – Listen Respect and Respond 2006
• Public accountability in today’s health service Guy Daly 1996
• Public Administration Select Committee: Inquiry into the role that “customers” or “users” should have in shaping or even helping to provide public services. 2008
• Public Agency and Community Empowerment Strategies
• Public and Patient Involvement In Wales
• Public involvement in health care Florin and Dixon BMJ (£) 2004
• Real involvement: working with people to improve services 2008
• The Role of Patient Involvement in Practice Based Commissioning within the UK’s National Health Service 2010
• Running out of patience 2009
• Scottish Health Committee supports introduction of Health Board elections Jan 2007
• Scottish Health Council
• The sham of NHS consultation on service provision Sean Boyle & Roger Steer 2008
• Social Governance
• Squaring the Circle Democracy in the NHS: SHA policy statement 1996
• Stafford General Hospital: Daily Telegraph report of goings on at the Patient Forum
• Ten Great Myths of Patient & Public Involvement Trevor Gay 2006