David Gilbert
| Information | Feedback | Influence | |
| Individual | Information to patients about treatments and services Informed consent Letters between clinicians available to patients |
Individual patients able to feed back on their own care and treatment to improve quality Ability to get help and raise issues of concern and to seek redress (PALS) |
Shared decision making
Support to empower individual patients (e.g. advocacy) |
| Collective | Information to the wider public about what the organisation is doing Information to the wider public about how well the organisation is doing |
Trends in complaints / issues raised by PALs, etc.
Feedback on patient experience (Patient Forums) |
PPI in policy and planning (Patient Forums)
Support for lay representatives |
Some thoughts about….
trends in PPI
mixed motivations for doing it
people now struggling with ‘how’ not ‘why’
toolkits galore….but analysis paralysis
what CHI has found
pockets of notable practice….but little sharing
few links between operational and strategic capacity
better at some things than others
performance management of PPI
let’s talk the same language
….look at the same sorts of things
….and be clear about who does what